Living With A Parotid Tumor

I've been pretty busy working lately, which accounts in part for why there haven't been any new diaries, but there is also the knowledge that in a few days I will be having surgery for the fifth recurrence of a medical oddity known as a parotid tumor. For all the normal people out there who have never heard of the parotid gland, it is the largest salivary gland in the human body, a matching set on each side of the head, and is perilously close to the facial nerve and nerves controlling things like eyelids and ears and whatnot. Four times I have had a form of tumor called a pleomorphic adenoma, a benign and largely painless thing which just keeps growing until it is taken out. My four surgeries took place starting in 1974 and continuing to 1983, with varying degrees of success. After nine years of surgeries just about every other year I decided to simply ignore the next recurrence, which started when I was about 26 years old and when my family and career were just getting started, and has been growing inexorably to this, my fiftieth year. Time for it to go.

The problem with parotid tumors is that sometimes they can "go south". In other words it is possible for my benign pleomorphic adenoma to become a carcinoma ex pleomorphic adenoma. This, and the fact that the darn thing is really sticking out of my head now, covered only by a hank of my graying, thinning hair, means it is time to take out the trash. The surgery is on April 19th. In a few months I will undertake radiation treatment, whether or not the biopsy is bad, in order to try to prevent or at least delay another recurrence. Each recurrence increases the possibility of a malignancy developing. The problem with radiation treatment is that there is some research indicating that a recurrence after RT is more likely to be malignant than it would have been if the RT hadn't been undertaken, but by the same token that is only if there is a recurrence. At this point the likelihood of a recurrence if I do not have the RT is 100% and if I do have the RT it's more like 50%. I'd rather take a chance of a bad recurrence for the opportunity to have no recurrence, instead of sitting around waiting for the inevitable next recurrence without the RT.

So the tumor's coming out in an outpatient procedure. If all goes well I'll be up and running around after a few days. If not so well, then I may have some problems with my eyelid - the transgenital nerve which controls the eyelid runs through the tumor - and my eyelid would not be able to close. There's always a danger of facial paralysis, but for some reason this does not bug me as much as the thought of having a Pinkerton eye (we never sleep!). If my lid is affected then it may affect my sight, which will in turn affect my ability to do close work. If the facial nerve is damaged I may look like I have Bell's Palsy, but as long as I can talk, see, and swallow I can live with the idea. It no longer frightens me, as it did when I was a young litigator starting out, that my looks could be so affected. Guess we'll know after Thursday.